Meghan Halley, PhD, MPH, is a Research Scholar in the Center for Biomedical Ethics (SCBE) at Stanford University. She completed her doctorate in medical anthropology from Case Western Reserve University in 2012, and additional training in health services research at the Palo Alto Medical Foundation Research Institute from 2012 through 2016. After a hiatus from research to care for her second child, who was born with a rare genetic condition that remains undiagnosed, Dr. Halley joined SCBE in 2020. Her current research focuses at the intersection of the ethics and economics of new genomic technologies. Her current projects include: 1) examining ethical issues related to sustainability and governance of patient data and relationships when large clinical genomic studies transition to new models of funding; 2) exploring how diverse stakeholders perceive value in the use of genome sequencing for diagnosis of rare diseases; and 3) developing new measures for assessing patient-centered outcomes in pediatric rare diseases. She is also a member of the patient and family advisory group of the Undiagnosed Diseases Network, where her son is a current participant.
Member, Maternal & Child Health Research Institute (MCHRI)